I totally agree with you regarding the lack of money being diverted to MD research. I would have to take issue with your example though. We have a third world broadband coverage in this country and will never encourage businesses to set-up in our rural areas, unless we have suitable, high speed broadband.
Back to the lack of money in MD research. At last year's Scottish MD conference, we were told that in that year, the MDC pulled in £5m but The Donkey Sanctuary got over £20m! That is a pretty depressing comparison i think.
If we consider that a GP will probably only encounter one MD patient in their career, it is hardly surprising that little research is done, compared to cancer, which effects almost all families in the UK.
I have check out the percentage of people who suffer from Becker MD (my one) and it is 3-6 per hundered thousand, whilst 80% of men get Prostate Cancer by the age of 80. How can we ever compete with Cancer charities, who get the lion's share of donations?
That being said, there is still a hell of alot more that can be done, to raise the profile of Muscular Dystrophy.
Common sense is not so common.