Ameena wrote:....I just feel uncomfortable hearing about people who are scared of an assessment process that might say that they are able to work. Do we agree that it is the process that is flawed and not the principle?
I hope that the state will recognise that and support me. But I do worry that we could be seen to be fighting against something that I thought we actually wanted - not to be discriminated against in the world of work?
As I said, don't shoot me. It is horrible to feel that your future is out of your control - .....I just think it would be good to have a debate about the principles of work, not work, ESA vs JSA etc.
Thank you for your post inviting debate. This is what we feel our forum is all about, long posts, confronting issues and
debating them freely. You raise many valid and interesting points.
I too hope that when the time comes that the state will recongnise all the issues correctly and support Ameena because that is the irght thing to happen. if any of us sound a little twisted, bitter and fearful it is simply because we do not
have that confidence. You are so right that processess are flawed if only we could have our priciples.
Experience is making us all the more fearful. Just this month our friend Ranald tried to get his same job back with
his old employer. The only difference was that now the employer knows he has incurable, progressive and degenerative
muscle disease. The progressive element means employers just do not give us a chance. I myself in 2001 got
a grant for £1550 under the "Access To Work" scheme and added £ 1500 of my own money. With £ 3000 worth of equipment
I applied for 462 jobs that year and got three of them. One lasted a week, one two hours and the other would not
let me start at all till I signed a letter of indemnity against any loss the firm sustained because of my medical
condition. At that stage I only had problems in hands, arms and shoulders. Now it has spread all over my chances
are so much worse. This is the problem, employers will not give us a chance.
The fact is currently that every disabled person is being retested and over 93 % of them are found "Fit For work",just
because they can lift a milk carton once or turn over a pound coin. Now they are competing against three million
able bodied unemployed, the vast majority will not find work. People like us with incurable, progressive, degenerative
conditions are the ones who have the very least hope.
The state taking away the support of hundreds of thousands of people who will never find employment is
cruel and immoral. I would love to debate it all and think we can get a fair deal and not be descriminated
against. We are not fighting against anything or antone, we are desperately trying to survive.
My mother only was able to remain at home because of the I.L.F.. The ILF along with most other
Government support has gone. Many thousands of disabled people will lose their homes because
of a problem they are not responsible for and are now being asked to pay for.
This is why we may at times appear a little jaundiced and tired and appear to have given up hope. There is
a juggernaut heading straight towards us, we cannot see how to avoid it.
Sorry to appear argumentative. You must have a superb employer and all the right levels of
hope and optimism that any of us should have and I hope you never lose it. Thank you for your